International Thoracic Organ Transplant (TTX) Registry

TTX Registry Steering Committee

Five people posing for a photo at ISHLT2023 in Denver

The TTX Registry Steering Committee is responsible for the oversight of the registry's operation and monitoring its ongoing progress.

Data Coordinating Center

The Data Coordinating Center (DCC) for the TTX Registry is the United Network for Organ Sharing (UNOS). UNOS hosts the database and manages the collection and analysis of the data. Questions about the TTX Registry and the data submission process may be directed to ishlthelp@unos.org.

The International Thoracic Organ Transplant (TTX) Registry was created to provide on-going, current data regarding patient, donor, and transplant characteristics as well as post-transplant outcomes.  Our Registry is the only one of its kind.  All institutions and countries performing heart, heart-lung, and/or lung transplantation are invited to submit data to the TTX Registry.
 

Registry Resources


Registry News

Thoracic Transplantation Around the Globe: An ISHLT2025 Registry Special Session Recap

May 15, 2025, 09:00 by Alyssa Simpson
The ISHLT International Thoracic Organ Transplant (TTX) Registry hosted a special session at ISHLT2025 in Boston to highlight the recent progress in international data sharing with the ISHLT Registry following the challenges of evolving privacy regulations.
The ISHLT International Thoracic Organ Transplant (TTX) Registry hosted a special session at ISHLT2025 in Boston. This session offered a unique global perspective on thoracic transplantation, highlighting the recent progress in international data sharing with the ISHLT Registry following the challenges of evolving privacy regulations. Chaired by Rebecca Cogswell, MD, the session marked a pivotal milestone in the Registry’s re-launch and showcased successful 2024 data transfers from several key regional collectives.

The participating collective—representing the UK, Brazil, ScandiaTransplant, KOTRY Heart and Lung—presented regional analyses, trends in cardiothoracic transplantation practices and survival rates, advancements in donor management strategies, and shared key regional variations in access and allocation.

This session underscored the expanding global collaboration within the thoracic transplant community and reinforced the importance of harmonized data sharing to enhance clinical insights and improve patient outcomes worldwide.

Learn more about the ISHLT TTX Registry

Download the 2024 TTX Registry Annual Report

Questions?
Contact Olivia Penninger at +1-312-224-1253 or send an email to olivia.penninger@ishlt.org.