International Thoracic Organ Transplant (TTX) Registry
TTX Registry Steering Committee
The TTX Registry Steering Committee is responsible for the oversight of the registry's operation and monitoring its ongoing progress.
Data Coordinating Center
The Data Coordinating Center (DCC) for the TTX Registry is the United Network for Organ Sharing (UNOS). UNOS hosts the database and manages the collection and analysis of the data. Questions about the TTX Registry and the data submission process may be directed to ishlthelp@unos.org.
Registry Resources
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2024 Annual Report from the ISHLT International Thoracic Organ Transplant Registry
This comprehensive report includes newly submitted data from 12 global partners and covers heart and lung transplantations from 1992 to 2024.
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TTX Registry Report: Early Renal Failure After Primary Thoracic Organ Transplantation
This is a special report from the International Society for Heart and Lung Transplantation (ISHLT) International Thoracic Organ Transplant (TTX) Registry focuses on renal failure after thoracic organ transplantation.
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International Thoracic Organ Transplant (TTX) Registry) Data Fields / Look Up Tables / Forms
Spreadsheets providing the list of data fields that the TTX Registry collects.
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International Thoracic Organ Transplant (TTX) Registry Data Use Agreement
Individuals requesting standard deidentified datasets will be required to sign a Data Use Agreement (DUA) before receiving the dataset.
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International TTX Registry Steering Committee Charter
Composition, aims and responsibilities for the TTX Registry Steering Committee.
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International Thoracic Organ Transplant (TTX) Registry Data Request Policy
All requests for data and/or analysis from the International Thoracic Organ Transplant (TTX) Registry must be submitted using the ISHLT Data/Analysis Request Form.
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International Thoracic Organ Transplant (TTX) Registry Enrollment Policy
All institutions and countries performing heart, heart-lung, and/or lung transplantation are invited to submit data to the ISHLT TTX Registry through a data sharing arrangement with the regional/national Data Collectives or Registry Partners.
Registry News
2023 International Thoracic Organ Transplant (TTX) Registry Report
Lead Authors: Eileen Hsich, Tajinder P. Singh, Wida S. Cherikh, Alexandra Lewis, Shaina Kian, Michael Perch, Don Hayes, Rebecca Cogswell
The 2023 International Thoracic Organ Transplant (TTX) Registry Report is now available. This is a special report focuses on renal failure after thoracic organ transplantation. It provides an in-depth analysis of the incidence, risk factors, and mortality
risks associated with early post-transplant dialysis in adult and pediatric heart and lung transplant recipients. The TTX Registry analysis included over 50,000 adults and over 7,500 pediatric recipients who underwent heart transplant between 1994
and 2018.
Rebecca Cogswell, MD, Chair of the TTX Registry Steering Committee, will be presenting new data during General Session I at the ISHLT’s 45th Annual Meeting & Scientific Sessions in Boston, MA USA on 27 April, 2025. Watch the video below to learn more about the presentation and make a plan to attend.
Questions?
Contact Olivia Penninger at +1-312-224-1253 or send an email to olivia.penninger@ishlt.org.
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