See ISHLT Registration Data Elements for technical details for the registration fields.
Click here to view a sample of the 5-page Registration Record.
The information contained on the Patient Registration Page is entered when a patient is added in ISHLT. See Adding a Patient for steps on adding a patient.
Transplant Hospital Name and Provider Number: Select the hospital and center code where the transplant operation was performed from the drop-down list.
Chart Number: Enter the patient's chart number.
9IS Number: This number servers as a primary identifier for the recipient. The 9IS Number can not be modified.
Last Name: (optional) Enter the patient's last name.
First Name: (optional) Enter the patient's first name.
Middle Name: (optional) Enter the patient's middle name.
Date of Birth: (or) Enter the patient's date of birth in mm/dd/yyyy format or enter the patient's Age at Transplant in the space provided.
Age at Transplant: Enter the patient's age at the time transplant if the Date of Birth is not entered.
Gender: Select the transplant patient's gender.
ABO Blood Group: Indicate the patient's blood type. The blood type of Z can only be selected for In Utero patients.
Diagnosis: Select the patient's diagnosis, at the time of registration, from the drop-down list.
Previous Transplant: Indicate whether the patient had a previous transplant by selecting YES or NO.
Donor Date of Birth: (or) Enter the donor's date of birth in mm/dd/yyyy format or enter the donor's Age of Recovery in the space provided.
Donor Age of Recovery: Enter the donor's age at recovery if the Date of Birth is not entered.
Donor ABO Blood Group: Select the donor's blood type. The blood type of Z can only be selected for In Utero donors.
Donor Gender: Indicate the donor's gender.
Transplant Date: Enter the patient's transplant date in the standard 8-digit mm/dd/yyyy format.
Procedure Type: Select the transplant procedure type from the drop-down list.
Ischemia Time: (optional) Enter the total organ ischemia time in minutes. If this information is not available, select the appropriate option from the ST field.
PATIENT DISCHARGED INFORMATION
Patient Status: Select the appropriate status for this patient.
Living: Select only if the patient is living at the time of discharge or six weeks post-transplant.
Retransplanted: Select only if the patient received another thoracic organ from a different donor prior to being discharged from the hospital.
Note: If the patient is being retransplanted, access the patient's last record for their previous transplant and select Retransplanted in the Patient Status field.
Dead: Select only if the patient died during the hospitalization following the transplant operation.
Date of Death: If the patient's status is Dead, enter the date of death.
Cause of Death: If the Patient Status is Dead, enter the patient's primary cause of death.
Date of visit: If the patient's status is Retransplanted or Living, enter the patient's last date of visit.