ISHLT REGISTRIES AND DATABASES COMMITTEEQUICK LINKS2009-2010 COMMITTEE LEADERSHIP ROSTER [printer-friendly]
CONTACT INFORMATIONMarshall I. Hertz, MDUniversity of Minnesota
Pulmonary/Critical Care Medicine
420 Delaware Street, SE
MMC 398
Minneapolis, MN 55455
Phone: 612-624-0999
Fax: 612-625-2174
E-mail:
hertz001@umn.eduJennifer C. Matthews, MDUniv of Michigan Health Systems
Cardiovascular Center
1500 East Medical Center Dr
Floor 3
Ann Arbor, MI 48109
Phone: 734-214-0691
Fax: 415-476-5712
Email:
jennmatt@umich.eduMariano Feccia, MDS. Camillo Hospital
Dept of Cardiosurgery
Via Portuense, 332
Rome, 00149
ITALY
Phone: 390-6-3367-9748
Fax: 390-6-3367-0105
Email:
fecciam@tin.it(Back to Top)Fabienne Dobbels, PhDUniversity Hospital Leuven
Center for Health Services and Nursing Research
Kapucijnenvoer 35/4
B-3000 Leuven
BELGIUM
Phone: 32 16 33 69 81
Fax: 32 16 33 69 70
Email:
fabienne.dobbels@med.kuleuven.beFrauke Mattner, MDHannover Medical Center
Med Microbiology & Hosp Epidemiology
Carl Neuberg-Strasse 1
Hannover, D-30625
GERMANY
Phone: 49-511-532-8675
Fax: 49-511-532-8174
Email:
frauke.mattner@uk-sh.deShaf Keshavjee, MDToronto General Hospital
Thoracic Surgery
200 Elizabeth Street, 9 N-947
Toronto, ON M5G 2C4
CANADA
Phone: 416-340-4010
Fax: 416-340-4556
Email:
Dr.Shaf.Keshavjee@uhn.on.ca(Back to Top)Richard E. Chinnock, MDLoma Linda University Children's Hospital
11175 Campus St.
Coleman Pavilion, Room A1109
Loma Linda, CA 92350
Phone: 909-558-4130
Fax: 90-494-5493
Email:
rchinnock@llu.eduAdaani Frost, MDBaylor College of Medicine
6620 Main
Houston, TX 77030
Phone: 713-790-2400
Fax: 713-790-2688
Email:
frost@bcm.tmc.eduJaap Lahpor, MD, PhDUniversity Medical Center Utrecht
Heidelberglaan 100
E 03.511
Utrecht 3584 CX
THE NETHERLANDS
Phone: 31-30-250-6179
Fax: 31-30-250-5058
Email:
j.r.lahpor@umcutrecht.nl(Back to Top)Robert F. Padera, MD, PhDBrigham & Women's Hospital
Department of Pathology
75 Francis St.
Boston, MA 02115
Phone: 617-525-6792
Fax: 617-277-9015
Email:
rpadera@partners.orgRoger D. Yusen, MD, MPHWashington University School of Medicine
Pulmonary and Critical Care Medicine
660 S. Euclid, Box 8052
St. Louis, MO 63110
Phone: 314-454-8764
Fax: 314-454-5571
Email:
ryusen@dom.wustl.eduMaria G. Crespo-Leiro, MDHospital Juan Canalejo
Servicio de Cardiologia
Xubias 84
La Coruna 15006
SPAIN
Phone: 34-981-178-304
Fax: 34-981-178-299
Email:
mcrelei@canalejo.org(Back to Top)Leah Edwards, PhDUnited Network for Organ Sharing
700 North 4th Street
Richmond, VA 23219
Phone: 804-782-4945
Email:
edwardlb@unos.orgJaime WilliamsonISHLT Transplant Registry
700 North 4
th Street
Richmond, VA 23219
Phone: 804-782-4894
Fax: 804-782-4809
Email:
williajh@unos.orgKathryn A. Philibin, RNISHLT/UNOS
Clinical Data System
700 North 4th Street
Richmond, VA 23219
Phone: 804-782-4854
Fax: 804-782-4809
Email:
philibka@unos.orgCOMMITTEE COMPOSITION- The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry.
- The leader of each Scientific Council Workforce on Registries and Databases shall serve on the Committee.
- The Medical Director of each ISHLT Registry and Database shall serve on the Committee.
- The Committee Chair shall appoint up to two additional members to serve as outcomes specialists.
- The biostatistician for the Thoracic Registry shall serve on the committee.
COMMITTEE RESPONSIBILITIES- Develop criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity.
- Ensure, to the greatest extent possible, uniformity across registries and databases in terms of data fields, data definitions, patient identifiers, etc.
- Review and evaluate proposals for registries and databases generated by the Scientific Councils, determine priorities and costs, and make recommendations to the Board regarding approval of such proposals.
- Oversee the implementation of new registries and databases and monitor their ongoing progress, participation rates, and cost benefit ratio.
- Conduct regular evaluations regarding the need to continue to operate existing registries and databases.
- Act as liaison between the Scientific Council Workforces on Registries and Standards and the Board to facilitate the presentation of well structured proposals for the board's consideration, with appropriate budget proposals
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