Boards & Committees - Registries and Databases



ISHLT REGISTRIES AND DATABASES COMMITTEE

QUICK LINKS2009-2010 COMMITTEE LEADERSHIP ROSTER      [printer-friendly]

Marshall I. Hertz, MD, Chair
Jennifer C. Matthews, MD, Junior Faculty and Trainee Council Workforce Leader
Mariano Feccia, MD, Heart Failure Council Workforce Leader
Fabienne Dobbels, PhD, Nursing, Health Science, and Allied Health Council Workforce Leader
Frauke Mattner, MD, Infectious Diseases Council Workforce Leader
Shaf Keshavjee, MD, Pulmonary Transplantation Workforce Leader
Richard E. Chinnock, MD, Pediatric Council Workforce Leader
Adaani Frost, MD, Pulmonary Hypertension Council Workforce Leader
Jaap Lahpor, MD, PhD, Mechanical Circulatory Support Council Workforce Leader
Robert F. Padera, MD, PhD, Pathology and Basic Science Council Workforce Leader
Roger D. Yusen, MD, MPH, Outcomes Specialist
Maria G. Crespo-Leiro, MD, Outcomes Specialist
Leah Edwards, PhD, Thoracic Registry Biostatistician
Jaime Williamson, SAS Analyst
Kathryn A. Philibin, RN, TII Liaison



CONTACT INFORMATION


CHAIR
Marshall I. Hertz, MD
University of Minnesota
Pulmonary/Critical Care Medicine
420 Delaware Street, SE
MMC 398
Minneapolis, MN  55455
Phone: 612-624-0999
Fax: 612-625-2174
E-mail: hertz001@umn.edu

JUNIOR FACULTY AND TRAINEE COUNCIL
Registries and Databases Workforce Leader

Jennifer C. Matthews, MD
Univ of Michigan Health Systems
Cardiovascular Center
1500 East Medical Center Dr
Floor 3
Ann Arbor, MI 48109
Phone: 734-214-0691
Fax: 415-476-5712
Email: jennmatt@umich.edu

HEART FAILURE COUNCIL
Registries and Databases Workforce Leader

Mariano Feccia, MD
S. Camillo Hospital
Dept of Cardiosurgery
Via Portuense, 332
Rome, 00149
ITALY
Phone: 390-6-3367-9748
Fax: 390-6-3367-0105
Email: fecciam@tin.it

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NURSING, HEALTH SCIENCE, AND ALLIED HEALTH COUNCIL
Registries and Databases Workforce Leader

Fabienne Dobbels, PhD
University Hospital Leuven
Center for Health Services and Nursing Research
Kapucijnenvoer 35/4
B-3000 Leuven
BELGIUM
Phone: 32 16 33 69 81
Fax: 32 16 33 69 70
Email: fabienne.dobbels@med.kuleuven.be

INFECTIOUS DISEASES COUNCIL
Registries and Databases Workforce Leader

Frauke Mattner, MD
Hannover Medical Center
Med Microbiology & Hosp Epidemiology
Carl Neuberg-Strasse 1
Hannover, D-30625
GERMANY
Phone: 49-511-532-8675
Fax: 49-511-532-8174
Email: frauke.mattner@uk-sh.de

PULMONARY TRANSPLANTATION COUNCIL
Registries and Databases Workforce Leader

Shaf Keshavjee, MD
Toronto General Hospital
Thoracic Surgery
200 Elizabeth Street, 9 N-947
Toronto, ON M5G 2C4
CANADA
Phone: 416-340-4010
Fax: 416-340-4556
Email: Dr.Shaf.Keshavjee@uhn.on.ca

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PEDIATRIC COUNCIL
Registries and Databases Workforce Leader

Richard E. Chinnock, MD
Loma Linda University Children's Hospital
11175 Campus St.
Coleman Pavilion, Room A1109
Loma Linda, CA  92350
Phone: 909-558-4130
Fax: 90-494-5493
Email: rchinnock@llu.edu

PULMONARY HYPERTENSION COUNCIL
Registries and Databases Workforce Leader

Adaani Frost, MD
Baylor College of Medicine
6620 Main
Houston, TX 77030
Phone: 713-790-2400
Fax: 713-790-2688
Email: frost@bcm.tmc.edu

MECHANICAL CIRCULATORY SUPPORT COUNCIL
Registries and Databases Workforce Leader

Jaap Lahpor, MD, PhD
University Medical Center Utrecht
Heidelberglaan 100
E 03.511
Utrecht 3584 CX
THE NETHERLANDS
Phone: 31-30-250-6179
Fax: 31-30-250-5058
Email: j.r.lahpor@umcutrecht.nl

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PATHOLOGY AND BASIC SCIENCE COUNCIL
Registries and Databases Workforce Leader

Robert F. Padera, MD, PhD
Brigham & Women's Hospital
Department of Pathology
75 Francis St.
Boston, MA 02115
Phone: 617-525-6792
Fax: 617-277-9015
Email: rpadera@partners.org

OUTCOMES SPECIALIST
Roger D. Yusen, MD, MPH
Washington University School of Medicine
Pulmonary and Critical Care Medicine
660 S. Euclid, Box 8052
St. Louis, MO 63110
Phone: 314-454-8764
Fax: 314-454-5571
Email: ryusen@dom.wustl.edu

OUTCOMES SPECIALIST
Maria G. Crespo-Leiro, MD
Hospital Juan Canalejo
Servicio de Cardiologia
Xubias 84
La Coruna 15006
SPAIN
Phone: 34-981-178-304
Fax: 34-981-178-299
Email: mcrelei@canalejo.org

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THORACIC REGISTRY BIOSTATISTICIAN
Leah Edwards, PhD
United Network for Organ Sharing
700 North 4th Street
Richmond, VA 23219
Phone: 804-782-4945
Email: edwardlb@unos.org

SAS ANALYST
Jaime Williamson
ISHLT Transplant Registry
700 North 4th Street
Richmond, VA 23219
Phone: 804-782-4894
Fax: 804-782-4809
Email: williajh@unos.org

TII LIAISON
Kathryn A. Philibin, RN
ISHLT/UNOS
Clinical Data System
700 North 4th Street
Richmond, VA 23219
Phone: 804-782-4854
Fax: 804-782-4809
Email: philibka@unos.org

COMMITTEE COMPOSITION
  • The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry.
  • The leader of each Scientific Council Workforce on Registries and Databases shall serve on the Committee.
  • The Medical Director of each ISHLT Registry and Database shall serve on the Committee.
  • The Committee Chair shall appoint up to two additional members to serve as outcomes specialists.
  • The biostatistician for the Thoracic Registry shall serve on the committee.
COMMITTEE RESPONSIBILITIES
  1. Develop criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity.
  2. Ensure, to the greatest extent possible, uniformity across registries and databases in terms of data fields, data definitions, patient identifiers, etc.
  3. Review and evaluate proposals for registries and databases generated by the Scientific Councils, determine priorities and costs, and make recommendations to the Board regarding approval of such proposals.
  4. Oversee the implementation of new registries and databases and monitor their ongoing progress, participation rates, and cost benefit ratio.
  5. Conduct regular evaluations regarding the need to continue to operate existing registries and databases.
  6. Act as liaison between the Scientific Council Workforces on Registries and Standards and the Board to facilitate the presentation of well structured proposals for the board's consideration, with appropriate budget proposals
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