ISHLT: The International Society for Heart & Lung Transplantation

Boards & Committees - Registries and Databases

2011-2012 REGISTRIES AND DATABASES COMMITTEE
CHAIR
	Marshall I. Hertz, MD University of Minnesota Minneapolis, Minnesota, USA 612-624-0999 hertz001@umn.edu	Marshall Hertz, MD, is a Professor of Pulmonary, Allergy, Critical Care and Sleep Medicine at the University of Minnesota, Minneapolis, Minnesota. Dr. Hertz received his BS and MD degrees from the University of Michigan. He completed his residency in Internal Medicine and his fellowship in Pulmonary and Critical Care Medicine at the University of Minnesota. He has been on the faculty at the University of Minnesota since 1984. Dr. Hertz is currently Director of the University of Minnesota Center for Lung Science and Health, and has served as Medical Director of the Lung Transplant program since its inception in 1986. He is also Medical Director of the ISHLT Thoracic Transplant Registry. Dr. Hertz has authored or co-authored more than 200 peer-reviewed manuscripts, book chapters, and other publications - almost all of which have been in the field of lung transplantation. His research interests have focused on understanding, detecting, preventing, and treating chronic lung allograft dysfunction.
COUNCIL WORKFORCE LEADERS
	Josef Stehlik, MD, MPH Heart Failure University of Utah Salt Lake City, Utah, USA 801-585-2340 josef.stehlik@hsc.utah.edu	Josef Stehlik, MD, MPH is an Associate Professor of Medicine at the University of Utah School of Medicine. Dr. Stehlik received his medical degree from Charles University in Prague and Masters in Public Health degree from Harvard School of Public Health. He completed his training in Internal Medicine and in Cardiovascular Diseases at Allegheny General Hospital, MCP*Hahnemann University and advanced training in Heart Failure and Transplantation at the Cleveland Clinic. Dr. Stehlik has been on faculty at the University of Utah since 2004 and serves as Medical Director of the Heart Transplant Program at the University of Utah Hospital and the Salt Lake City Veterans Affairs Medical Center. He has been active in clinical work, education and research in the areas of advanced heart failure, heart transplantation and mechanical circulatory support.
Image coming soon...	Paolo A. Grossi, MD, PhD Infectious Diseases Co-Leader University of Insubria Varese, ITALY 39-0332-393389 paolo.grossi@uninsubria.it	Bio coming soon...
	Shahid Husain, MD, MS Infectious Diseases Co-Leader Toronto General Hospital Toronto, Ontario, CANADA 416-340-4800 shahid.husain@uhn.on.ca	Shahid Husain, MS, MBBS, MD is an Associate Professor of Medicine at the University of Toronto, Canada and Director of the Transplant Infectious Diseases at the University Health Network, Toronto, Canada. He earned his undergraduate degree at Adamjee Government Science College in Karachi, Pakistan and his medical degree (MBBS) in Medicine, Surgery, Gynecology, Eye, ENT, and Pediatrics at the Dow Medical College in Karachi. Dr. Husain obtained a Masters in Science Degree in Clinical Trials at the University of Pittsburgh, PA. He completed his internship in General Medicine and Surgery at the Civil Hospital in Karachi and his registrarship in Urology and Transplant at Sindh Institute of Urology and Transplantation in Karachi, followed by a residency in Internal Medicine at Cook County Hospital, Chicago, Illinois, where he was also Chief Medical Resident. Dr. Husain also completed a fellowship in infectious diseases at the University of Pittsburgh. Dr. Husain's research interests include assessment of biological markers of invasive fungal and viral infections in solid organ transplant recipients, infectious etiology of obliterative bronchiolitis in lung transplant recipients, the use of inhaled antifungals and antibiotics for the treament and prophylaxis in immunocompromised hosts, and the epidemiology and outcomes of fungal and viral infections in immunocompromised hosts.
	Jennifer A. Cowger, MD, MS Junior Faculty and Trainees University of Michigan Health Systems Ann Arbor, Michigan, USA 734-232-4154 jennmatt@umich.edu	Jennifer Cowger MD, MS, is a clinical lecturer in Cardiovascular Medicine. Her expertise is in advanced heart failure, cardiac transplant, and mechanical support of the heart. Dr. Cowger received her medical degree from the Ohio State University, graduating class valedictorian in 2001. She completed her Internal Medicine Residency at Duke University Medical Center in Durham, North Carolina in 2004. She received her Cardiovascular Medicine Fellowship training at the University of Michigan with subspecialty training in Heart Failure and Cardiac Transplant which was completed in 2007. After concluding her medical education, Dr. Cowger obtained a Masters in Clinical Research and Statistics at the University's School of Public Health. Dr. Cowger's research interests are in mechanical circulatory support of the heart using left ventricular assist devices (LVADs). Her specific research area of focus is on improving patient outcomes with long term LVAD support. She is also interested in investigating novel means of reducing oxidative stress in the setting of heart failure.
Image coming soon...	Jaap Lahpor, MD, PhD Mechanical Circulatory Support University Medical Center Utrecht Utrecht, THE NETHERLANDS 31-88-755-6179 j.r.lahpor@umcutrecht.nl	Bio coming soon...
	Fabienne Dobbels, PhD Nursing, Health Sciences and Allied Health University Hospital Leuven Leuven, BELGIUM 32-16-33-69-81 fabienne.dobbels@med.kuleuven.be	Dr. Dobbels is a psychologist with clinical experience in the field of heart transplantation. She is a professor at the Center for Health Services and Nursing Research at the Katholieke Universiteit Leuven, Belgium. Her key research topics include patient adherence, psychosocial issues and patient reported outcomes related to transplantation and other chronic illnesses.
	Robert F. Padera, MD, PhD Pathology Brigham & Women's Hospital Boston, Massachusetts, USA 617-525-6792 rpadera@partners.org	Robert Padera, MD, PhD, is Assistant Professor of Pathology at Harvard Medical School. He earned his MD from Harvard Medical School, his PhD from the Massachusetts Institute of Technology,and completed his residency at Brigham and Women's Hospital. His clinical specialties are in autopsy pathology, cardiac pathology, and pulmonary pathology. Dr. Padera's research interests include biotechnology, lung cancer, mouse models and transplant pathology.
	Richard E. Chinnock, MD Pediatric Transplantation Loma Linda University Children 's Hospital Loma Linda, California, USA 909-558-4130 rchinnock@llu.edu	Richard Chinnock, MD, is Chair of Pediatrics and Professor of Pediatrics at Loma Linda University School of Medicine, and Medical Director of the Pediatric Heart Transplant Program at Loma Linda University Children's Hospital in Loma Linda, California. His research has focused on the long-term outcomes of pediatric heart transplantation. Dr. Chinnock completed medical school and an internship in Pediatrics from Loma Linda University Medical Center. Subsequently he completed his residency in Pediatrics and was Pediatric Chief Resident at the US Naval Hospital in San Diego, California. He is currently working on a Masters of Science in Health Care Management from the Harvard School of Public Health, where he anticipates completing his degree in May 2013.
	Mardi Gomberg-Maitland, MD, MSc Pulmonary Hypertension Co-Leader University of Chicago Medical Center Chicago, Illinois, USA 773-702-5589 mgomberg@medicine.bsd.uchicago.edu	Mardi Gomberg-Maitland, MD, MSc, is Associate Professor of Medicine and Director of the Pulmonary Hypertension Program at the University of Chicago Medical Center. She is an expert clinician and researcher in the field of pulmonary heart disease. In recent years, she has participated in dozens of multi-center, multi-national research trials to explore new therapies for pulmonary hypertension. She is a former Doris Duke Clinical Scientist winner for her research in Phase I drug development. She is currently focusing on pulmonary arterial, pulmonary venous hypertension/diastolic dysfunction, and biomarker development. Dr. Gomberg-Maitland attended medical school at the Albert Einstein College of Medicine in New York. She completed her residency at the New York Presbyterian Hospital-Weill/Cornell Medical Center and a fellowship at Mount Sinai Medical Center in New York. In addition, she has earned a Masters in Clinical Epidemiology from Harvard School of Public Health in Boston, Massachusetts. She is board certified in Internal Medicine and Cardiology.
	Fernando Torres, MD, PA Pulmonary Hypertension Co-Leader UT Southwestern Medical Center Dallas, Texas, USA 214-645-6487 fernando.torres@utsouthwestern.edu	Fernando Torres, MD, is Associate Professor and Director of the Lung Transplant Program at UT Southwestern Medical Center in Dallas, Texas. Dr. Torres attended medical school at Cornell University Medical College in Ithaca, New York. He completed his internship and residency in Internal Medicine at UT Southwestern, and fellowships in Pulmonary Disease and Critical Care Medicine and Lung Transplant/Lung Volume Reduction at the University of Colorado Health Science Center. Dr. Torres is board certified in Internal Medicine, Pulmonary Disease and Critical Care Medicine from the American Board of Internal Medicine and a United Network for Organ Sharing (UNOS) Lung Transplant Physician.
	Shaf Keshavjee, MD, FRCSC Pulmonary Transplantation Toronto General Hospital Toronto, Ontario, CANADA 416-340-4010 Dr.Shaf.Keshavjee@uhn.on.ca	Dr. Shaf Keshavjee is the Surgeon-in-Chief at University Health Network and the Director of the Toronto Lung Transplant Program, a university program spanning UHN and the Hospital for Sick Children. He is a Professor in the Division of Thoracic Surgery at the University of Toronto. He is also Head of the Joint Division of Thoracic Surgery of UHN and St Joseph’s Hospital, McMaster University. Dr. Keshavjee completed his medical training at the University of Toronto in 1985. He subsequently trained in General Surgery, Cardiac Surgery and Thoracic Surgery at the University of Toronto followed by fellowship training at Harvard University and the University of London for airway surgery and heart-lung transplantation respectively. In addition to his clinical practice in Thoracic Surgery at Toronto General Hospital, Dr. Keshavjee leads a team of researchers in a well-established CIHR funded research program and is widely published in the field. His specific research interest is in lung injury related to transplantation. His current work involves the study of molecular diagnostics and gene therapeutic strategies to engineer better organs for lung transplantation.
ADDITIONAL MEMBERS
	Roger D. Yusen, MD, MPH Outcomes Specialist Washington University School of Medicine St. Louis, Missouri, USA 314-454-8764 ryusen@dom.wustl.edu	Roger Yusen, MD, MPH, is an Associate Professor of Medicine in the Pulmonary and Critical Care Medicine Division of Washington University School of Medicine (WUSM) in St. Louis, Missouri. He is a lung transplant pulmonologist and the medical director of the lung volume reduction surgery program at WUSM and Barnes-Jewish Hospital. He focuses his research efforts on technology assessment in pulmonary and transplant medicine.
	Maria G. Crespo-Leiro, MD Outcomes Specialist Hospital Universitario A. Coruna y Trasplante Cardiaco La Coruna, SPAIN 34-981-178-304 marisacrespo@gmail.com	Maria G (Marisa) Crespo-Leiro, MD, PhD, FESC, is the Medical Director of the Advanced Heart Failure Transplant Unit at the Hospital Universitario A Coruña, La Coruña, Spain. She obtained her MD degree at the University of Santiago de Compostela, her specialization in cardiology at Clinica Puerta de Hierro in Madrid and her PhD from Universidad Autónoma de Madrid. Since 1993 she has been working in the Heart Division at the Hospital Universitario A Coruña (formerly the Hospital Universitario Juan Canalejo) in La Coruña, where she is also Associate Professor of Medicine. Her main fields of research interest are heart failure and heart transplantation.
Image coming soon...	Jaime Williamson SAS Analyst ISHLT Registry Richmond, Virginia, USA 804-782-4945 williajh@unos.org	Bio coming soon...
Image coming soon...	Kathryn A. Philibin, RN TII Liaison ISHLT/UNOS Richmond, Virginia, USA 804-782-4854 kathryn.philibin@unos.org	Bio coming soon...
COMMITTEE COMPOSITION
The Registries and Databases Committee shall be chaired by the Medical Director of the Thoracic Transplant Registry. The leader of each Scientific Council Workforce on Registries and Databases shall serve on the Committee. The Medical Director of each ISHLT Registry and Database shall serve on the Committee. The Committee Chair shall appoint up to two additional members to serve as outcomes specialists. The biostatistician for the Thoracic Registry shall serve on the committee.
COMMITTEE RESPONSIBILITIES
Develop criteria, policies, and standards to which all ISHLT registries and databases must conform, to include the following: data field development, patient data privacy, data definitions, data collection protocols, data use protocols, data distribution protocols, data analysis, institutional enrollment, data protection, data validity and integrity. Ensure, to the greatest extent possible, uniformity across registries and databases in terms of data fields, data definitions, patient identifiers, etc. Review and evaluate proposals for registries and databases generated by the Scientific Councils, determine priorities and costs, and make recommendations to the Board regarding approval of such proposals. Oversee the implementation of new registries and databases and monitor their ongoing progress, participation rates, and cost benefit ratio. Conduct regular evaluations regarding the need to continue to operate existing registries and databases. Act as liaison between the Scientific Council Workforces on Registries and Standards and the Board to facilitate the presentation of well structured proposals for the board's consideration, with appropriate budget proposals